My story...so far

It was the beginning of September 2018. I was dressed ready to head to work when I started getting the most excruciating pain. I could barely walk. My mum rang 111 to get any advice on what to do. They suggested we went to A&E as they suspected it could be appendicitis. After blood tests they could say it was not that and sent me home after they gave me some pain relief. 

This pain continued for weeks and gradually got worse, I began to heavily bleed; which was unusual as I had been on the mini pill for over a year and had not had a period since I started it. (TMI WARNING) The blood was very brown -not fresh- and then slowly became a normal red colour after a few weeks. There were many clots too. 

As the pain and bleeding continued for so long and the pain medication was not working, I ended up at A&E many nights in order to get stronger medication. 

They thankfully sped up my operation after many visits to the gynaecology doctor to fully determine its endometriosis that was causing my pain. I had to quit my job and defer a year from college as I could not manage the pain. I was so upset and endometriosis has seriously ruined my life. Its the lack of information that doctors have on it and how its so tricky to diagnose. But also the horrendous pain I have to endure as well as the constant bleeding.

In the laparoscopy they discovered endometriosis so therefore fitted the mirena coil to help manage the growth of it, this should have also stopped my bleeding and pain...but it didn't. They did however, burn away the endo tissue which should have also reduced my pain. 

Skip a head to this year, I still suffer from horrendous pain. I have been to many appointments to determine why I'm still having the pain and the bleeding. Its rare to still bleed after being on the mirena so they put me on the mini pill again to see if it would stop the bleeding and then therefore stop the pain. It didn't. I now take two tablets a day to stop my bleeding and so far it has worked. I do still have the coil fitted. 

I was having to take oromorph, tramadol and codeine all at once to stop the pain. However, this much medication made me sick and incredibly drowsy which is why I have now been referred to a pelvic pain clinic. They believe the pain was made worse by my muscles going into spasm as a result of the endo and the operation. Other muscles have had to work stronger and harder to counter act for the ones that haven't been working. I am now going to receive physiotherapy to help strengthen my muscles again and also see a pelvic pain clinic to learn in ways to manage the pain. 

I am hoping I can have a proper life again as it has really stopped me from living. Its also taken a massive toll on my mental health, but I'll do another post about that.