Lets try this again

Hi I'm Eleanor, i am nearly 23 years old and I was diagnosed with endometriosis back in 2018. To say it stunted my freedom and life as a 19 year old is an understatement.

Once again I am sat here in a huge endo flare up. I am on the search again for a job that can understand my medical conditions and how they affect me. I am a hard worker and very organised person, and want to grow my career. Yes, I may look young and healthy on the outside but on the inside its a different story. I have come to the realisation that I cannot do a job which requires me to be on my feet for long hours as it causes pain and flares. And often these flares result in migraines, chronic fatigue, low mood and a week (minimum) of being unwell. This realisation has been very painful to take, I am young and want to do so many things but I know my body physically cannot do it. 

I started this blog to educate people on endometriosis, PCOS, IBS and so on and so forth and how these conditions often all roll into to one. But I feel more forgotten about than ever. It's hard to be heard at the doctors, they think you're being dramatic or just give you other meds to mask the symptoms. This has also been a running theme in my employment. Although initially places have been accommodating, as time goes by people question me and I eventually feel pushed out. However, I completely understand why companies may not want to take on someone who is chronically ill. Who would want someone to work for them who could be off at least once a month or at the doctors or at the hospital? This isn't to say I am not a hard worker. I just have daily obstacles. 

I feel at a loss. I want to work. I want to be a voice for those with these conditions. I want to spread awareness and help others get the support and help they need. I want to feel less alone. I am in the process of being diagnosed with fibromyalgia but as expected the NHS is under so much pressure. Trying to be heard in the NHS is just as hard as trying to be heard in everyday life! 

Will this ever change? My goal is to make this change. I am jobless with no income and ill most days of the week. I cannot survive in this current climate let alone follow my dreams of travelling and getting private healthcare. This is why I am putting myself out there. I am a very creative person who likes to stay busy, work hard and be social. Please reach out if you have any tips or ideas for me. I have considered starting my own company or getting into social media as it gives me control over my working days. I want to build a community so please reach out, I would love to make new friends, learn new things and start having a proper life. 

I look forward to this journey and hopefully you will see a lot more of me. As Albus Dumbledore once said "Happiness can be found in even the darkest of times, if one only remembers to turn on the light"